Miss Tess Updates

Miss Tess has an appointment today with her pediatric cardiologist. Hoping everything is still looking good. The dietitian has changed her feedings. She went down in calories per ounce but up in overall feeding volume. The hope is that she will have less throwing up and less acid overall in her bowel movements. This will hopefully help her skin issues. We are now using regular diapers with cloth inserts to protect her skin. We are also using our fourth prescription cream and on top of that we're using stoma powder. So far, so good! Tess's paperwork is in the hands of the cardiologist at Duke. The surgeon has gone over everything and is, in my understanding, just waiting for word from cardiology to let us know that Miss Tess has been accepted. Then we begin the fights with insurance. End result, we should be in NC by end of April. I have had a few people ask what they can get for Miss Tess. We will keep this one registry open and up-to-date for a while. I think that most everything we need/want for Tess (other than her new Thymus) is on this registry! https://www-secure.target.com/gift-registry/myitems?registryId=_Qnw2wNY77NuRu3QxF_lkQ&accessedOn=1423237263523 Thanks again!